Looking beyond the current status in both the course of the disease and notions of what is to come. Believing we will find a cure.
To SUPPORT rigorous scientific research for LGMD2A.
To EDUCATE on the disease course as recounted through my personal experiences.
About Beyond Labels & Limitations:
BL&L was founded by John Graybill II and his parents in September 2007. At the time, there were no organizations raising money specifically for Limb-Girdle Muscular Dystrophy 2A along with providing longitudinal personal information dealing with Limb-Girdle Muscular Dystrophy 2A. The desire to make a difference was born and Beyond Labels & Limitations was formed.