2018 Golfing for a Cure Fundraiser
1st Place Champs
September 15 2018
The 12th Annual “Dancing For A Cure” Fundraiser
“Flirtin with the Mob”
May 18, 2019
Beyond Labels & Limitations
BL&L, an organization established to raise money dedicated exclusively to Limb-Girdle Muscular Dystrophy 2A (LGMD2A) and to educate on the disease course and associated struggles of LGMD2A, as recounted through my personal experiences.
In 2007 when BL&L was established we wanted the organization to look beyond the current status in both the course of the disease and perceptions of what’s to come; to believe there is a cure out there and we’ll find it; and in hope for what’s to come in the future.
The LGMD Genetic Testing Program announced the release of a new diagnostic program. Several LGMD family foundations have teamed up to create a new website where undiagnosed individuals with a muscle problem can take a quiz to see if they qualify for free genetic sequencing, sponsored by our consortium of foundations. Sequencing includes 35 genes causing LGMD and other muscular dystrophies. Currently, only US residents are eligible for free sequencing but if the program is successful, we plan to expand internationally.
Dancing For A Cure Fundraiser:
May 18th, 2019
We would like to thank our sponsor “Houser Plessl Wealth Management Group” for being our sponsor this year! With their help along with the 263 people who attended the dance on May 18th 2019 we were able to raise $5300.!
Band: “Flirtin with the Mob”
Sponsor: “Houser Plessl Wealth Management Group”
If we do not change our direction, we are likely to end up where we are headed.