2013 Golfing for a Cure - Winners
The 8th Annual “Dancing For A Cure” fundraiser
Beyond Labels & Limitations
BL&L, an organization established to raise money dedicated exclusively to Limb-Girdle Muscular Dystrophy 2A (LGMD2A) and to educate on the disease course and associated struggles of LGMD2A, as recounted through my personal experiences.
In 2007 when BL&L was established we wanted the organization to look beyond the current status in both the course of the disease and perceptions of what’s to come; to believe there is a cure out there and we’ll find it; and in hope for what’s to come in the future.
The LGMD Genetic Testing Program announced the release of a new diagnostic program. Several LGMD family foundations have teamed up to create a new website where undiagnosed individuals with a muscle problem can take a quiz to see if they qualify for free genetic sequencing, sponsored by our consortium of foundations. Sequencing includes 35 genes causing LGMD and other muscular dystrophies. Currently, only US residents are eligible for free sequencing but if the program is successful, we plan to expand internationally.
Dancing For A Cure Fundraiser:
March 28th, 2015
Day: Saturday, March 28th, 2015
Time: 7:00-10:00pm (Doors open at 6pm)
Location: Fearless Fire Company, 1221 South Front St. Allentown, PA
Sponsors: Houser Plessl Wealth Management & Allentown Beverage
If we do not change our direction, we are likely to end up where we are headed.Ancient Chinese Proverb
“Golfing For A Cure” Fundraiser:
Saturday, June 13th, 2015
When: Saturday, June 13th, 2015 Where: Allentown Municipal Golf Course, 3400 Tilghman Street, Allentown, PA 18104 Time: Shotgun Start 8:00 am, Check-in 7:00 am Type: Four Person Scramble Cost: $90.00 per/person (includes: greens fee, cart, lunch, beverage, gift bag) Contests: Putting Contest, Closest To The Pin, Pot Of Gold, Longest Drive, 50/50 Raffle Team Prizes: 1st Place – Trophy & Prize, 2nd Place – Trophy & Prize, 3rd Place – Trophy & Prize Register: Begins January 9th 2015, Ends June 1st, 2015