2016 Golfing for a Cure Champions
The 11th Annual “Dancing For A Cure” Fundraiser
“Flirtin with the Mob”
April 21, 2018
Beyond Labels & Limitations
BL&L, an organization established to raise money dedicated exclusively to Limb-Girdle Muscular Dystrophy 2A (LGMD2A) and to educate on the disease course and associated struggles of LGMD2A, as recounted through my personal experiences.
In 2007 when BL&L was established we wanted the organization to look beyond the current status in both the course of the disease and perceptions of what’s to come; to believe there is a cure out there and we’ll find it; and in hope for what’s to come in the future.
The LGMD Genetic Testing Program announced the release of a new diagnostic program. Several LGMD family foundations have teamed up to create a new website where undiagnosed individuals with a muscle problem can take a quiz to see if they qualify for free genetic sequencing, sponsored by our consortium of foundations. Sequencing includes 35 genes causing LGMD and other muscular dystrophies. Currently, only US residents are eligible for free sequencing but if the program is successful, we plan to expand internationally.
Dancing For A Cure Fundraiser:
April 21, 2018
11th Annual Dancing For a Cure
Our 11th dancing for a cure fundraiser will be on April 21, 2018. Again we will be at the Fearless Fire Company in Allentown. All the details are under “Events”, “Dancing For A Cure” tabs. Thank you for coming out and supporting our cause of funding research for a cure of Limb Girdle Muscular Dystrophy 2A!
Band: “Flirtin with the Mob”