Welcome to
Beyond Labels & Limitations

BL&L, an organization established to raise money dedicated exclusively to Limb-Girdle Muscular Dystrophy 2A (LGMD2A) and to educate on the disease course and associated struggles of LGMD2A, as recounted through my personal experiences.

In 2007 when BL&L was established we wanted the organization to look beyond the current status in both the course of the disease and perceptions of what’s to come; to believe there is a cure out there and we’ll find it; and in hope for what’s to come in the future.

The LGMD Genetic Testing Program announced the release of a new diagnostic program. Several LGMD family foundations have teamed up to create a new website where undiagnosed individuals with a muscle problem can take a quiz to see if they qualify for free genetic sequencing, sponsored by our consortium of foundations. Sequencing includes 35 genes causing LGMD and other muscular dystrophies. Currently, only US residents are eligible for free sequencing but if the program is successful, we plan to expand internationally.
www.lgmd-diagnosis.org

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Upcoming Fundraiser

Dancing For A Cure Fundraiser:
September 12th, 2020

This year, 2020, will be our 13th annual Dancing For A Cure dance fundraiser. If you would like to attend please contact us.

We would also like to thank our sponsor “Houser Plessl Wealth Management Group” for being our sponsor this year!  

Dance Details:

When: September 12th, 2020

Where: Fearless Fire Company, 1221 South Front Street, Allentown, PA

Time: Doors open at 6pm

Tickets: $10 per/person in advance, $15 per/person at the door

Band: “Flirtin with the Mob”

Sponsor: “Houser Plessl Wealth Management Group”