2017 Golfing for a Cure Fundraiser

Saturday, June 17th, 2017

Allentown Municipal Golf Course


September 30th

The 10th Annual “Dancing For A Cure” Fundraiser

“Flirtin with the Mob”

Welcome to
Beyond Labels & Limitations

BL&L, an organization established to raise money dedicated exclusively to Limb-Girdle Muscular Dystrophy 2A (LGMD2A) and to educate on the disease course and associated struggles of LGMD2A, as recounted through my personal experiences.

In 2007 when BL&L was established we wanted the organization to look beyond the current status in both the course of the disease and perceptions of what’s to come; to believe there is a cure out there and we’ll find it; and in hope for what’s to come in the future.

The LGMD Genetic Testing Program announced the release of a new diagnostic program. Several LGMD family foundations have teamed up to create a new website where undiagnosed individuals with a muscle problem can take a quiz to see if they qualify for free genetic sequencing, sponsored by our consortium of foundations. Sequencing includes 35 genes causing LGMD and other muscular dystrophies. Currently, only US residents are eligible for free sequencing but if the program is successful, we plan to expand internationally.

Upcoming Fundraiser

Dancing For A Cure Fundraiser:
April 8th, 2017


10th Annual Dancing For a Cure

Day: Saturday, April 8th, 2017

Location: Fearless Fire Company, 1221 South Front Street, Allentown, PA 18103

Time: Doors open at 6pm, Music 7-10pm

Tickets: $10 in advance / $15 at the door

Band: “Flirtin with the Mob”


If we do not change our direction, we are likely to end up where we are headed. Ancient Chinese Proverb

Upcoming Fundraiser

“Golfing For A Cure” Fundraiser:

Saturday, June 17th, 2017


Allentown Municipal Golf Course

Day: Saturday, June 17th, 2017

Location: Allentown Municipal Golf Course, 3400 Tilgham Street, Allentown, PA 18104

Time: 7am Check-in, 8am Shotgun Start

Cost: $90.00 per golfer

Includes: Greens Fee, Golf Cart, Snack, Beverage, Lunch, Golfer Bag

Format: 4-person Scramble, best ball

Contests: Putting, Closest to Pin, Straightest Drive, Pot of Gold, 50/50 Raffle

Trophies: 1st Place, 2nd Place, 3rd Place


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