Welcome to
Beyond Labels & Limitations
BL&L, an organization established to raise money dedicated exclusively to Limb-Girdle Muscular Dystrophy 2A (LGMD2A) and to educate on the disease course and associated struggles of LGMD2A, as recounted through my personal experiences.
In 2007 when BL&L was established we wanted the organization to look beyond the current status in both the course of the disease and perceptions of what’s to come; to believe there is a cure out there and we’ll find it; and in hope for what’s to come in the future.
The LGMD Genetic Testing Program announced the release of a new diagnostic program. Several LGMD family foundations have teamed up to create a new website where undiagnosed individuals with a muscle problem can take a quiz to see if they qualify for free genetic sequencing, sponsored by our consortium of foundations. Sequencing includes 35 genes causing LGMD and other muscular dystrophies. Currently, only US residents are eligible for free sequencing but if the program is successful, we plan to expand internationally.
www.lgmd-diagnosis.org
Follow Us
Completed Fundraiser
Dancing For A Cure Fundraiser:
April 21, 2018
11th Annual Dancing For a Cure
Our 11th dancing for a cure fundraiser was held on April 21, 2018 at the Fearless Fire Company in Allentown. We would like to thank “Houser Plessl Wealth Management Group” for sponsoring the event. We would also like to thank the 300 people who attended the event. Lastly we would like to thank the band “Flirtin with The Mob”. Because of our joint efforts we were able to raise $6,400!
Band: “Flirtin with the Mob”
Sponsor: “Houser Plessl Wealth Management Group”
Upcoming Fundraiser
Golfing For A Cure
When: September 15, 2018
Where: Allentown Municipal Golf Course
Time: 7am Registration, 8am Shotgun Start
Cost: $90. per golfer
Format: 4-person Scramble, best ball
Prizes: 1st, 2nd, 3rd Place, Raffle Prizes
Deadline to Register: September 1, 2018