Welcome to
Beyond Labels & Limitations
BL&L, an organization established to raise money dedicated exclusively to Limb-Girdle Muscular Dystrophy 2A (LGMD2A) and to educate on the disease course and associated struggles of LGMD2A, as recounted through my personal experiences.
In 2007 when BL&L was established we wanted the organization to look beyond the current status in both the course of the disease and perceptions of what’s to come; to believe there is a cure out there and we’ll find it; and in hope for what’s to come in the future.
The LGMD Genetic Testing Program announced the release of a new diagnostic program. Several LGMD family foundations have teamed up to create a new website where undiagnosed individuals with a muscle problem can take a quiz to see if they qualify for free genetic sequencing, sponsored by our consortium of foundations. Sequencing includes 35 genes causing LGMD and other muscular dystrophies. Currently, only US residents are eligible for free sequencing but if the program is successful, we plan to expand internationally.
www.lgmd-diagnosis.org
Completed Fundraiser
Dancing For A Cure Fundraiser:
April 8th, 2017
10th Annual Dancing For a Cure
We want to thank our sponsor: Houser Plessl Wealth Management Group for their continual support in our organization!
We also want to thank the band “Flirtin with the Mob”…they did an unbelievably great job and because of them our event was one of the best over the last 10 years.
I want to also thank the 313 people who came out to the dance. Because of everyone’s efforts we raised $5,980.56!
Band: “Flirtin with the Mob”
Upcoming Fundraiser
“Golfing For A Cure” Fundraiser:
Saturday, June 17th, 2017
Allentown Municipal Golf Course
Day: Saturday, June 17th, 2017
Location: Allentown Municipal Golf Course, 3400 Tilgham Street, Allentown, PA 18104
Time: 7am Check-in, 8am Shotgun Start
Cost: $90.00 per golfer
Includes: Greens Fee, Golf Cart, Snack, Beverage, Lunch, Golfer Bag
Format: 4-person Scramble, best ball
Contests: Putting, Closest to Pin, Straightest Drive, Pot of Gold, 50/50 Raffle
Trophies: 1st Place, 2nd Place, 3rd Place
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