Welcome to
Beyond Labels & Limitations
BL&L, an organization established to raise money dedicated exclusively to Limb-Girdle Muscular Dystrophy 2A (LGMD2A) and to educate on the disease course and associated struggles of LGMD2A, as recounted through my personal experiences.
In 2007 when BL&L was established we wanted the organization to look beyond the current status in both the course of the disease and perceptions of what’s to come; to believe there is a cure out there and we’ll find it; and in hope for what’s to come in the future.
The LGMD Genetic Testing Program announced the release of a new diagnostic program. Several LGMD family foundations have teamed up to create a new website where undiagnosed individuals with a muscle problem can take a quiz to see if they qualify for free genetic sequencing, sponsored by our consortium of foundations. Sequencing includes 35 genes causing LGMD and other muscular dystrophies. Currently, only US residents are eligible for free sequencing but if the program is successful, we plan to expand internationally.
www.lgmd-diagnosis.org
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Upcoming Fundraiser
Dancing For A Cure Fundraiser:
May 18th, 2019
When: May 18th, 2019
Where: Fearless Fire Company, 1221 South Front St. Allentown, PA
Time: Doors open at 6pm
Tickets: $10 per/person in advance, $15 at the door
Benefits: Research for a cure of Limb Girdle Muscular Dystrophy 2A
Band: “Flirtin with the Mob”
Sponsor: “Houser Plessl Wealth Management Group”
If we do not change our direction, we are likely to end up where we are headed.
Ancient Chinese ProverbUpcoming Fundraiser
Golfing For A Cure
We would like to thank “Houser Plessl Wealth Management Group” for once again being our sponsor at this years’ 10th Golfing For A Cure golfing event.
When: Saturday, September 14th 2019
Where: Allentown Municipal Golf Course, 3400 Tilghman Street, Allentown Pa 18104
Time: 8am Shotgun start, 7am Registration
Format: 4-person Scramble, best ball
Cost: $90.00 per/golfer
Prizes: 1st, 2nd, 3rd Place, Raffle prizes
Includes: Cart, snack, lunch, beverage, golfer gift bag
***Must have completed forms by August 14th 2019***