2015 Golfing for a Cure - Winners
The 8th Annual “Dancing For A Cure” fundraiser
Beyond Labels & Limitations
BL&L, an organization established to raise money dedicated exclusively to Limb-Girdle Muscular Dystrophy 2A (LGMD2A) and to educate on the disease course and associated struggles of LGMD2A, as recounted through my personal experiences.
In 2007 when BL&L was established we wanted the organization to look beyond the current status in both the course of the disease and perceptions of what’s to come; to believe there is a cure out there and we’ll find it; and in hope for what’s to come in the future.
The LGMD Genetic Testing Program announced the release of a new diagnostic program. Several LGMD family foundations have teamed up to create a new website where undiagnosed individuals with a muscle problem can take a quiz to see if they qualify for free genetic sequencing, sponsored by our consortium of foundations. Sequencing includes 35 genes causing LGMD and other muscular dystrophies. Currently, only US residents are eligible for free sequencing but if the program is successful, we plan to expand internationally.
Dancing For A Cure Fundraiser:
April 15th, 2016
Music: “Tower Suites”
Day: Friday, April 15th, 2016
Time: 7:00-10:00pm (Doors open at 6pm)
Location: Fearless Fire Company, 1221 South Front St. Allentown, PA
Cost: $15 in advance / $20 at the door
If we do not change our direction, we are likely to end up where we are headed.Ancient Chinese Proverb
“Golfing For A Cure” Fundraiser:
Saturday, June 18th, 2016
When: Saturday, June 18th, 2016
Where: Allentown Municipal Golf Course, 3400 Tilghman Street, Allentown, PA 18104
Time: Shotgun Start 8:00 am, Check-in 7:00 am
Type: Four Person Scramble
Cost: $90.00 per/person (includes: greens fee, cart, lunch, beverage, gift bag)
Registration Deadline: Must have completed four-some registration form and payment by June 4th, 2016