2018 Golfing for a Cure Fundraiser

1st Place Champs

September 15 2018

LGMD
AWARENESS
DAY

September 30th

The 12th Annual “Dancing For A Cure” Fundraiser

“Flirtin with the Mob”

May 18, 2019

Welcome to
Beyond Labels & Limitations

BL&L, an organization established to raise money dedicated exclusively to Limb-Girdle Muscular Dystrophy 2A (LGMD2A) and to educate on the disease course and associated struggles of LGMD2A, as recounted through my personal experiences.

In 2007 when BL&L was established we wanted the organization to look beyond the current status in both the course of the disease and perceptions of what’s to come; to believe there is a cure out there and we’ll find it; and in hope for what’s to come in the future.

lgmd_diagnosis
The LGMD Genetic Testing Program announced the release of a new diagnostic program. Several LGMD family foundations have teamed up to create a new website where undiagnosed individuals with a muscle problem can take a quiz to see if they qualify for free genetic sequencing, sponsored by our consortium of foundations. Sequencing includes 35 genes causing LGMD and other muscular dystrophies. Currently, only US residents are eligible for free sequencing but if the program is successful, we plan to expand internationally.
www.lgmd-diagnosis.org

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Upcoming Fundraiser

Dancing For A Cure Fundraiser:
May 18th, 2019

homepage_slideshow_dance

When: May 18th, 2019

Where: Fearless Fire Company, 1221 South Front St. Allentown, PA

Time: Doors open at 6pm

Tickets: $10 per/person in advance, $15 at the door

Benefits: Research for a cure of Limb Girdle Muscular Dystrophy 2A

Band: “Flirtin with the Mob”

Sponsor: “Houser Plessl Wealth Management Group”

 

If we do not change our direction, we are likely to end up where we are headed.

Ancient Chinese Proverb

Completed Fundraiser

Golfing For A Cure

We would like to thank “Houser Plessl Wealth Management Group” for once again being our main sponsor at this years’ 9th Golfing For A Cure golfing event.  We would also like to thank all of our hole sponsors for making this years’ event a successful one.  Together we raised $3,700.00!