4-21-07 Self Study Book #1. 29 years old. My brother in law, who works for Penn University, sent me a packet of information regarding my disorder, Limb-Girdle Muscular Dystrophy, about a year and a half ago. Today I finally read it. What I found within this packet of information changed me. It’s unclear if the information was advantageous or discouraging to my well being.
The packet said, “the mean age at which an individual no longer becomes ambulatory is 32 years of age.” My 30th birthday is less than 3 months away and already I’m having difficulty with walking. I sway from left to right when walking on a flat surface even more than 6 months ago. When it comes to slight inclines such as a ramp, I need to walk with the left leg first approach. There
is no normal left-right-left-right when it comes to the ramp. Instead it’s left-left-left approach in which the right leg never passes the left leg but only seems to manage to place itself next to the left leg once it is moved. My hips are stiff and uneven. I’m noticing this more and more whenever I walk up the stairs and my hips aren’t cooperating or when I stand and notice my posture is slanted more to one side. In the process I am beginning to experience soreness in my wrist, my right wrist. As I look back over the past few weeks and attempt to pinpoint what changes I have made and if these changes are affecting me, I quickly see the following: I have decreased my supplements in half, I’ve been stretching only once a day instead of the 2 I use to do, I do not eat
enough vegetables, maybe 3 to 5 a day instead of the 11 I use to. My disciplines are fading and so is my health. These cutbacks have caused me to feel down and question whether this is possible to overcome limb-girdle muscular dystrophy in this life. These setbacks are making me tired and unmotivated to do anything about it. I feel that I am alone and I don’t know what to do. Please help me.
